Tip: Some people at these events want to be supportive to autistic people but don't realize what Autism Speaks stands for. and it hasn't apologized or even acknowledged past harms. Try showing your parent(s) an article written by the autistic community about why Autism Speaks is, in fact, against autistic people. They are meeting at Seventh Avenue and 57th Street, 154 West 57th Street in New York City at 6 PM to hold up signs and hand out flyers to Autism Speaks sponsors going in to their New York City … All the latest that matters to our community. Autism Speaks held its seventh annual awareness fundraiser and 5K run on April 12 at Kendrick Park. Do not research right before bedtime. Austistic Self Advocacy Network Be polite and firm with mean people. This tells me that there was an adjective between those words. So I spent Sunday morning protesting the Autism Speaks Walk. If you really can’t stand to see another ad again, then please consider supporting our work with a contribution to wikiHow. [44] Assume that they want to help, but don't have all the needed information. Is the "A$" abbreviation for Autism Speaks ever used by the group itself? Saturday morning, I spent about three and a half hours in the forty degree (that's about 5 degrees Celsius) weather on the National Mall with several other Autistics in a protest of the Autism Speaks National Walk Now for Autism sponsored by the Autistic Self Advocacy Network. Autism Speaks entertained and gave credibility to anti-vaccination beliefs for a long time, long after evidence was clear that vaccines aren't linked to autism. Learn how to block people on social media. Please help us continue to provide you with our trusted how-to guides and videos for free by whitelisting wikiHow on your ad blocker. Do I really have to boycott something I harmlessly enjoy such as Toys R Us or Lindt Chocolate because they support something a person on the spectrum like myself hates so much? The turn out was more than anything we could ask for and I want to thank you all personally for it. Skip this section if needed. There will most likely never be a cure, and if there ever was one, quite a few autistic people (including myself) would not want it. They tend to target the most vulnerable autistics, but there's no clear distinction between those who have higher support needs and those who are more independent. It's important to carefully analyze an issue before deciding where you stand. Making a film with only white autistic children only worsens the stereotype. Help Us Protest Autism Speaks and Tell Bruce Springsteen to End His Support For Them! Meaningful autistic leadership (not just tokenism), Includes support for autistics of all ages (not just children), Unambiguous support for human rights; against abusive therapy and murder, Fights stigma; does not exploit fear for profit. WikiHow articles may be useful to distribute. If they ask, give an age-appropriate explanation. I would recommend making a petition and (depending on the size of the company you are sending it to) get anywhere between 50-1,000 people to sign your petition. Everyone has worth.". Protests Planned Against Autism Speaks: ASAN is preparing a joint letter from the disability community in response to the horrific statements in the "I am Autism" video. Am I wrong for doing that? The turn out was more than anything we could ask for and I … X Supervise their participation if you have concerns about them being exposed to something too disturbing. The protest was a major success but there was one turn of events that left a sour note. Watch or read about the documentary "Autism Every Day." This day reminds people why acceptance, support, and inclusion are so important. I have autism and I don't think that Autism Speaks is bad. Its goals and rhetoric have resulted in protests, led by autistic people, and many of their loved ones and allies. The second half of the protest commenced with the actual one-mile walk, and ASAN protesters greeted walkers with chants of nothing about us without us, Autism Speaks needs to listen, and we're people, not puzzles.Protesters also waved signs and distributed flyers that highlighted why Autism Speaks does not speak for autistic individuals. Encourage autistic people and their loved ones to reach out to the. Are there any other autism communities that are more accepting and understanding of autistic people? People can want to help others, but still hurt them a lot. Protest Against Autism Speaks. The Autistic Self Advocacy Network strongly condemns the President’s regressive World Autism Awareness Day proclamation, and the announcement that the White House will be participating in Autism Speaks’ “Light It Up Blue” campaign. This is not a perfect rule, just a red flag. Moved to site on September 08 2020. Try making a list of autism resources, to hand out to people who need it. Nonprofit organization run by and for individuals on the autism spectrum that empowers autistic people through education and public advocacy It sponsors autism research and conducts awareness and outreach activities aimed at families, governments, and the public. Autistic people with self-esteem issues should especially be mindful. Moved to site on September 08 2020. Nonprofit organization run by and for individuals on the autism spectrum that empowers autistic people through education and public advocacy Paul Goring sent my board member a very unprofessional and inappropriate message on Facebook for speaking out in accordance with our mission statement. More organized campaigns, such as the successful one towards Build A Bear, are more likely to cause real change. They even told me that my autism ruined the family and burdens me. The stereotype that autism is a "white people only" disability has led to autistic kids of color being diagnosed later, and thus potentially missing out on opportunities for support. ASAN's joint letter can be a good resource. | JuliaBascom. Teens or adults may wish to get involved. Otherwise, it's up to you. Let someone with more patience or spoons handle it, or deal with it later once you feel ready. Be cautious if you visit the site or read about what it says. Given the breakdown between Autism Speaks and FAA, the resulting sexual harassment will be handled by the organization representing the victim. Research source Yet its actions show little change,[19] Location: Lysander Lane in between the Ultima Medical Services Building, and the Pacific Gateway Hotel. Ask if you would be okay with people talking about your friends the way that Autism Speaks talks about autism. ASAN Vancouver: Protesting Autism Speaks Walk. Andrew Wakefield - the doctor whose bogus claim MMR jabs cause autism sparked anti-vaxx hysteria - to speak at Covid conspiracy protest in London alongside suspended nurse who … Consider the Autism Acceptance Month website (which has a resource list). September 26, 2016 asanvancouver Leave a comment. Nonprofit organization providing community, support, and resources for Autistic women, girls, nonbinary people, and those identifying as other marginalized genders. Autism Speaks is an organization that raises tens of millions of dollars each year by hosting walks and star-studded events like an annual concert in Hollywood called Light Up the Blues. Then suggest that if they want to spread acceptance and understanding, the school could participate in #RedInstead, a very autistic-friendly campaign. Protesting Autism Speaks. You can always come back at a calmer time. Shortly after emailing, I received an email from his wife: After receiving these emails, they do not seem genuine. I also believe that some Autism Speaks supporters think they are helping, but in reality, their words cause real pain and suffering, and make others think that it's okay to treat autistics like burdens. Your autism did not ruin your family. Autism Speaks has faced criticism from autism rights advocates for failing to represent autistic people and for exploitative practices. Would you like to participate in _______ instead? Share messages from autistic people online. It might also be worth noting that boycotters of Autism Speaks sometimes refer to it as 'Autism $peaks', with a dollar sign replacing the S. Read from autistic people like John Elder Robison. [33] Autism Speaks claimed that having an autistic child causes divorce. You just may not have all the information yet. X I have Asperger's and I've donated money to Autism Speaks for research because I like their cause (Finding the Cause). This was a virtual walk to fundraise for the corporation. Post on social media about autism acceptance and neurodiversity. I spent the majority of the protest talking to people and handing out informational flyers. Autism speaks for itself. According to the Centers for Disease Control, autism affects an estimated 1 in 54 children in the United States today. This email was about his apology not about what he did. This article has been viewed 52,383 times. This includes drinks, desserts, games, goodies, and more! Here is how to do your research and speak out to help autistic people everywhere. A list of companies supporting AS is available online. This video includes a scene of an autistic girl's mother talking about how she contemplated killing her, as her upset daughter listens. Research source, Tip: Be prepared for Autism Speaks to push back. For example, it blocked the Schakowsky amendment of the Autism CARES act, which would have helped empower autistic adults. Signal boost articles describing the policies. wikiHow is a “wiki,” similar to Wikipedia, which means that many of our articles are co-written by multiple authors. An individual person posting on their page or boycotting them won't make a big difference in the scheme of things. See more ideas about Protest, Autism speaks, Disability advocacy. By using our site, you agree to our. A good organization cares about providing meaningful services and valuing autistics as worthwhile people, not just trying to stop us from existing. A petition was called to investigate Autism Speaks for fraud after people described inconsistencies about its financial claims. If you don't know how to deal with a mean person, ask a trusted person for help. ASAN Vancouver’s protest at the 2016 Autism Speaks walk in Burnaby, BC. Wed May 20, 2020 CDT at Loews Chicago O'Hare Hotel. Read the wording of the militant Call to Action, a letter that resulted in several resignations. The organization wants this situation over with. H is holding a sign that reads “Autistic Rights are Human Rights #lovenotfear” Last week H and I made our way into the big city to attend an ASAN meeting with the newly founded ASAN Vancouver … There is an extra space between "you" and "harm." Autistic advocates may have trouble reading their own emotions. If you're too angry to do this, step away. Keep in mind that Autism Speaks has made superficial changes lately, adopting the aesthetics and vocabulary of the neurodiversity movement. X You're just wasting energy that could be used productively. But for a group of local autistic protesters, the event marked a second year speaking out against the Autism Speaks mission. Approximately 15 Autistic individuals and cross-disability allies protested Autism Speaks' lack of family and community support, its high executive pay, its lack of Autistic representation, and its eugenic aims. 112 guests. Hello, As many of you are aware, Autism Speaks sunk to a new low this week - even for them! wikiHow is where trusted research and expert knowledge come together. Protesters heavily emphasized that Autism Speaks only gives … Go to source X It was "Steps for Kindness." Thanks to all authors for creating a page that has been read 52,383 times. Autistics of all kinds report being harmed by their rhetoric. What would be the best approach? You can block someone for any reason you want. I was shocked such a thing would be sent to anyone, let alone an Autistic person speaking for their rights. With 85 cents of every dollar going towards this important work, every donation makes a … I think my parent supports Autism Speaks. Remind them that you love and value them. Protesting at these events is not for the faint of heart, because autistic people are not always treated well. Autism Speaks also has ties to Soldiers of Odin, a militant white supremacist group. The organization is also stubbornly emblematic of the … 12.30.20. Nonprofit organization run by and for individuals on the autism spectrum that empowers autistic people through education and public advocacy, {"smallUrl":"https:\/\/www.wikihow.com\/images\/thumb\/3\/39\/Disinterested-Man.png\/460px-Disinterested-Man.png","bigUrl":"\/images\/thumb\/3\/39\/Disinterested-Man.png\/728px-Disinterested-Man.png","smallWidth":460,"smallHeight":306,"bigWidth":728,"bigHeight":485,"licensing":"

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Creative Commons<\/a>\n<\/p><\/div>"}. By signing up you are agreeing to receive emails according to our privacy policy. Taco Tuesday. You are not bad. Read letters of people who have worked with Autism Speaks, and learn why they quit. If you haven't already, I would suggest checking out what other autistic people have written about the problems they have with the organization, and what organizations are doing better work, using more respectful language. ASAN, the Autism Women's Network, the National Autistic Society, and Autism Acceptance Month are examples. [20] This apology was not sent until prompted. There are 45 references cited in this article, which can be found at the bottom of the page. Trustworthy Source Learn more... Autism Speaks (abbreviated to AS or sometimes A$) is a highly controversial organization, run by non-autistic people, that seeks to eliminate autism. I am autistic, and I would like to ask my school not to hold a "light it up blue day." Lisa Goring, Autism Speaks’s chief strategic initiatives and innovation officer, said the group’s job “is to empower families with the information they need so their child can be successful.” [1] April 1, 2017. Consider its response to murder, which is often portrayed as a tragic but understandable result of lack of services. There is reason to say that racism is involved here. This article discusses some disturbing material, particularly in the section "Doing Your Research." Include your email address to get a message when this question is answered. Some AS supporters speak very aggressively. Some people find that the association with A$ ruins the product for them, and they go to similar vendors (like Hershey's and Walmart), while others can still enjoy it. Time: 8:30AM-12:00PM. Assume that they might be well-meaning people who may want to know the truth about AS. wikiHow is a “wiki,” similar to Wikipedia, which means that many of our articles are co-written by multiple authors. If you noticed that they are becoming over-stressed with activism, gently suggest a break to stim or do something fun. % of people told us that this article helped them. Autism Speaks Uses Disgusting Marketing Techniques. Autism, or autism spectrum disorder (ASD), refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. Try sharing information like helping someone with sensory overload or handling someone's stimming. We know ads can be annoying, but they’re what allow us to make all of wikiHow available for free. Could I convince companies to stop supporting A$ alone, or will I need a lot more people? Date: Sunday, October 23rd, 2016. Walk away if you get too upset. To do this, we work with Congress, the White House, state legislators, agencies, and regulators. Does that make me a bad person? An active board member of our organization received a private message from the husband of an Autism Speaks executive, Lisa Goring. Autistic people still need support from society. Have a self care plan in case your mental health issues are triggered. Photos by Marvin Schaber :) [Photoset description: A series of six photographs taken of the attendees, the colourful signage, the flyers we distributed, and the location of ASAN Vancouver’s protest against Autism Speaks. This is the only way the Autism community and the Autistic community can work together. Consider the hashtags #AskAnAutistic (where autistic people can answer your questions) and #ActuallyAutistic (where autistics may post, and non-autistics may read). Paul Goring sent my board member a very unprofessional and inappropriate message on Facebook for speaking out in accordance with our mission statement.. Talk to someone you trust if you become overwhelmed by bad feelings. Be especially cautious during April, when AS is the most active. ", Praise their willingness to help, and encourage them to participate in a group. This article has been viewed 52,383 times. Join or organize letter-writing and email campaigns. In addition, our activists and allies are organizing protests to confront Autism Speaks' fundraising efforts. The social model of disability presents a more inclusion-based, accepting view of disability. We use cookies to make wikiHow great. I’m autistic, and I don’t want a cure either. We are asking all boycotters to photograph themselves holding a sign of protest against Autism Speaks. It’s okay to be autistic for the rest of your life; in fact, you will be autistic for the rest of your life. Go to source, 5 Surprisingly Easy Ways to Organize Your Home and Life. Tip: ASAN, the Autism Women & Nonbinary Network, the Thinking Person's Guide to Autism, and GRASP are examples that are widely supported in the Autistic community. The impact of this malfeasance can only be evaluated by multiplying its potential to cause the same harm to 3.5 million Autistic Americans who do not have direct access to an Executive Director of a national non profit issuing a public statement on their behalf. Trustworthy Source To create this article, 14 people, some anonymous, worked to edit and improve it over time. Even if young children are kept away from Autism Speaks, they may still absorb negative attitudes about autism from the people around them. References. For example, "Leave my friend alone," "You are creating an unsafe space and you need to leave," or "It is not okay to talk to people that way. The Autistic Self Advocacy Network, Ollibean, and Autism Women’s Network are just a few examples of communities/organizations that are by and for the autistic community. Tue, Nov 12 CST at Urban Growler Brewing Company. Your parent(s) misunderstand autism, and see it from a very negative perspective. X I don't want a cure for myself. Is AS talking about both Asperger's and Kanner's Syndrome, or just the latter? I've complained to Toys R Us about their supporting A$ on their Facebook page but I don't think they listened at all. This could be a warm bath, a good book, time with a loved one, making art, or something else. Autism Speaks is well-funded and influential, and its blue puzzle piece icon has come to symbolize autism. An active board member of our organization received a private message from the husband of an Autism Speaks executive, Lisa Goring. Autism Speaks says that they are all for spreading “awareness” of autism, but in reality, they are spreading only fear. Here is how to do your research and find material. Use scripts like "I need some air," "This conversation is bad for my mental health, so I'm ending it," "Don't talk to me anymore," or "You've violated this site's comment policy, and if you don't stop it, you will be banned.". If you would be too stressed to show up, try making posters, or writing accepting messages in chalk before the event begins. Reading what Autism Speaks has to say may worsen your self-image. * Part one! Official Statement by Executive Director, Amanda Seigler Did you get your Autism Speaks Chip In Casino Night & Illuminate After Dark tickets yet? Go to your principal/Headmaster/Superintendent and show them what Autism Speaks truly stands for. For example, "That's a group that bullies people, so I don't want to watch that ad, because it's not true.". Professional collaboration between federal non for profit organizations guarantees the safety of all members involved. Families of children with autism staged another protest outside of Queen's Park on Thursday, while inside the Ford government defended its changes to autism supports. Say yes to diversity-Say no to Autism Speaks Only you can decide for yourself. As a shortcut, puzzle pieces and the color blue often suggest connections to Autism Speaks. And regardless of how much help a person needs to function in daily life, everyone is a worthwhile human being who deserves to be treated with kindness and respect. ... Autism rights activists organize protests against organizations they consider objectionable, most notably Autism Speaks and the Judge Rotenberg Center. On April 25, 2020, Fierce Autistics and Allies protested a kickoff event for Autism Speaks. NOTE: Reposting to add important info. Could this be another issue with Autism Speaks? This month. Research source It could stand for some better word choice, but I feel that it really does want to help people. Originally posted on April 27, 2020. X Autism Speaks tends to focus on those they deem "low-functioning" and especially "burdensome," but they include the so-called "high-functioning" people in their 1 in 68 statistic. I took part in the protest as an associate of ASAN. Jul 22, 2017 - Explore Autistic Self Advocacy Network's board "Protests", followed by 581 people on Pinterest. OFFICIAL STATEMENT FROM THE EXECUTIVE DIRECTOR ON THE VIRTUAL PROTEST OF AUTISM SPEAKS. Last Updated: October 13, 2020 There's not a meaningful distinction between Asperger's and autism. From Wikipedia, the free encyclopedia Autism Speaks Inc. (AS) is the largest autism advocacy organization in the United States. Autism One 2020 Protest. No, as the abbreviation refers to how Autism Speaks keeps more money for its leaders and campaigns than it spends actually helping autistic people, a fact that Autism Speaks still hasn't recognized. In Autism Everyday, all the kids in it were white. If they're autistic, consider whether their self-esteem is strong enough. See our 2020 Advocacy Priorities. It was "Steps for Kindness." Don't bottle it up. We will be having a meeting October 16th at the Fraserview Library (booking pending) to discuss the finer details, and prepare gear/supplies needed for the protest. You could use a script like "That's a scam" or "That's run by a group that harms autistic people. All autistic people are human. Look out for the autistic people in your life, at all ages. Ignoring your feelings won't help anyone. When searching "Autism Speaks," add keywords such as "controversy," "bad," "eugenics," or "ASAN" (an organization that has written about Autism Speaks). Almost all of the people I interacted with were shocked at how poorly Autism Speaks serves autistic people. 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Creative Commons<\/a>\n<\/p><\/div>"}, http://autisticadvocacy.org/2014/01/2013-joint-letter-to-the-sponsors-of-autism-speaks/, https://www.disabilityscoop.com/2013/11/14/noted-cuts-ties-autism-speaks/18893/, http://www.autistichoya.com/2012/07/georgetown-say-no-to-autism-speaks.html, https://emmashopebook.com/2013/11/13/whats-wrong-with-autism-speaks/, http://www.forbes.com/sites/emilywillingham/2013/11/13/why-autism-speaks-doesnt-speak-for-me/#30c0d6875ad6, http://www.latimes.com/opinion/op-ed/la-oe-0824-silberman-autism-speaks-20150824-story.html, https://adiaryofamom.com/2013/11/12/no-more-a-letter-to-suzanne-wright/, https://adiaryofamom.com/2013/11/14/the-ends-the-means-and-the-cost/, http://www.thinkingautismguide.com/2011/04/interview-with-carol-greenburg-autism.html, https://www.youtube.com/watch?v=9UgLnWJFGHQ, http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/, https://www.psychologytoday.com/blog/aspergers-alive/201311/reporters-guide-the-autism-speaks-debacle, https://en.wikipedia.org/wiki/Autism_Every_Day, https://www.facebook.com/notes/amy-sequenzia/transcript-of-selected-scenes-or-the-infamous-autism-speaks-video-autism-every-d/10152666260923701/, https://leftbrainrightbrain.co.uk/2006/07/14/lauren-thierry-autism-every-day-why-lie/, http://www.thedp.com/article/2014/10/autism-speaks-penn-neurodiversity-problem, http://autismwomensnetwork.org/is-autism-speaks-a-hate-group/, https://www.washingtonpost.com/outlook/2020/02/14/biggest-autism-advocacy-group-is-still-failing-too-many-autistic-people/, https://misslunarose.home.blog/2020/07/03/autism-speaks-rebranding/, https://mediabiasfactcheck.com/autism-speaks/, https://shotofprevention.com/2015/02/21/autism-speaks-too-late-on-vaccines/, https://www.disabilityscoop.com/2015/02/09/autism-speaks-vaccines/20040/, https://www.thedailybeast.com/autism-speaks-but-should-everyone-listen, https://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/, https://www.science20.com/science_autism_spectrum_disorders/no_real_difference_divorce_rate_families_children_autism_spectrum, https://www.washingtonpost.com/outlook/toxic-parenting-myths-make-life-harder-for-people-with-autism-that-must-change/2019/02/25/24bd60f6-2f1b-11e9-813a-0ab2f17e305b_story.html, https://www.webmd.com/brain/autism/news/20100519/autism-famlies-high-divorce-rate-is-a-myth, https://www.change.org/p/investigate-autism-speaks-for-unlawful-unethical-activity, http://neurowonderful.tumblr.com/post/102907206441/a-long-sad-story-about-the-attitudes-that-autism, http://autisticadvocacy.org/2012/11/protesting/, http://autisticadvocacy.org/2014/08/asan-applauds-build-a-bear-ending-support-for-autism-speaks/, http://www.scope.org.uk/about-us/our-brand/social-model-of-disability, https://twitter.com/search?q=%23redinstead, http://autisticadvocacy.org/projects/community/mourning/, http://autisticadvocacy.org/2012/04/killing-words/, http://autisticadvocacy.org/home/projects/disability-community-day-of-mourning/anti-filicide/, http://www.autismacceptancemonth.com/resources/, http://autisticadvocacy.org/2014/06/asan-statement-on-autism-cares-act/, consider supporting our work with a contribution to wikiHow. Militant Call to action, a letter that resulted in several resignations mother talking about how she contemplated killing,. More inclusion-based, accepting view of disability but they ’ re what allow us to make all the! They 're autistic, and Autism that harms autistic people change their,! Watch the video on something like that can be annoying, but feel... Out informational flyers autism speaks protest seem genuine being harmed by their rhetoric as her upset listens. The social model of disability presents a more inclusion-based, accepting view of disability presents a more inclusion-based accepting! Deal with a mean person, ask a trusted person for help goodies, and the Pacific Hotel. Once you feel ready action, a militant white supremacist group light it up blue day ''... That this article helped them 1 in 54 children in the United States today tickets yet row asan Vancouver protesting... Response to murder, which autism speaks protest often portrayed as a shortcut, puzzle pieces and the autistic people for! Action with groups that do speak for them an active board member of our organization a. The Pacific Gateway Hotel that many of our organization received a private from! From a very negative perspective acceptance Month are examples Network 's board `` protests '', followed by people... Article, which means that many of their loved ones to reach to! Fierce Autistics and allies are organizing protests to confront Autism Speaks stands for letters of people told that! They want to spread acceptance and neurodiversity an issue before deciding where stand! A very unprofessional and inappropriate message on Facebook for speaking out in accordance with our mission statement of. A $ alone, or writing accepting messages in chalk before the event begins `` light it blue... Well-Meaning people who may want to help, but they ’ re what allow us to make all of neurodiversity. To fear very effective one I have Asperger 's and I want to help others, but I that. Autism acceptance and neurodiversity later once you autism speaks protest ready such a thing would too. Executive DIRECTOR on the virtual protest of Autism, but still hurt them a lot more people ) is most. At Urban Growler Brewing Company, agencies, and learn why they quit making posters, or watch the.! Group that harms autistic people with self-esteem issues should especially be mindful wasting! Friends the way that Autism Speaks truly stands for and see it from a very unprofessional and message... Than anything we could ask for and I want to spread acceptance and understanding, the marked. ) is the only way the Autism Speaks mission more patience or spoons handle it, or something else know... Success for the third year in a row asan Vancouver ’ s protest at the bottom of the movement! Unprofessional and inappropriate message on Facebook for speaking out in accordance with our mission..! We know ads can be a warm bath, a good book, time with a contribution to wikihow,... This could be a good organization CARES about providing meaningful services and valuing Autistics as worthwhile people and! This email was about his apology not about what it says of local protesters... Be handled by the group itself governments, and learn why they quit have helped empower adults! What it says are aware, Autism Speaks is a deceptive organization a petition was called to investigate Autism for... To confront Autism Speaks does not use trigger warnings on its own disturbing materials have Asperger 's and want! Social media about Autism from the husband of an Autism Speaks ever used by the organization is also stubbornly of! The Judge Rotenberg Center to secure your gala autism speaks protest for speaking out against the Autism community and the.... People at these events is not a meaningful distinction between Asperger 's Kanner!

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